Four-year-old Aidan Jackowiak has the extremely rare condition Cloves syndrome which has left him needing a wheelchair and causes him to suffer epileptic fits.
His parents Karl Smith and Vikki Jackowiak have struggled to find a home suited to his needs and feared it would take years to complete the renovations to their house in Alnwick, Northumberland.
But after word of their situation got around, a team of local workers stepped forward to offer them help.
Electricians, bricklayers and decorators gave up their free time to provide around £100,000 of labour, fittings and fixtures free of charge.
The family had to move out of their previous home because it was too difficult to move little Aidan around.
They purchased a run-down former fire officer’s house which was the perfect size, but was in very poor condition.
The back garden was overgrown, the boiler was condemned, the kitchen was in a very poor state and the loft had beetle rot.
Mr Smith was preparing to face the daunting prospect of trying to carry out the necessary improvements himself, but had very little DIY experience.
When locals heard of the family’s plight, qualified tradesmen and women began arriving at the front door and offering their help for free.
Some came from 50 miles away to help make the house more disabled-friendly.
Aidan’s parents have described the help of locals as ‘the sort of thing that restores your faith in human nature’.
The family say the house re-fit has vastly improved Aidan’s life and his ‘laughter now fills our home’.
They told their local paper, The Northumberland Gazette: ‘We are so grateful and there really aren’t any words to use to thank people enough.’
The local council meanwhile have fitted a lift and ramp for Aidan.
Gordon Webster, manager of the Alnwick MKM builders’ supply depot, masterminded the re-fit and convinced other workmen to help out.
He said: ‘When I saw what this family were going through I thought they really needed a bit of support.’
Aidan was born eight weeks prematurely weighing 4lb 10oz on Boxing Day 2010 after an uneventful pregnancy.
He was born with a growth on his face, back and leg and three weeks later he started to experience seizures with alarming regularity. Doctors then broke the news that he had suffered brain damage.
Aidan’s condition – which has left him with facial deformities – initially baffled doctors after his birth.
He underwent test after test to try to find out what was the matter with him, but every possible diagnosis came back negative.
It was only when he was two that doctors started to believe he had Cloves syndrome, which affects around only 150 people worldwide.